Role of nursing professionals in making hospital stay effective and less stressful for patients with ASD: A brief overview
Effective and less stressful stay in hospital for patients with ASD
The hospital may be especially overwhelming to patients with Autism Spectrum Disorder (ASD) and their families. The characteristics and attributes inherently present in patients with ASD provide substantial challenges to nursing care if not recognized, identified and addressed. ASD is a complex disorder and requires preparation, education, and great assessment skills from the nurses for optimal outcomes. Nurses are often the front-line and direct care providers and need to attain the knowledge and skills necessary to understand, interact with and implement excellent care for these individuals. These patients with ASD can present with a range of social and behavioral challenges including difficulty with communication need for structure, and possible aggression and it is difficult to implement care at times. Nowadays the nursing professionals are being increasingly aware of their role in helping to ensure that patients with ASD receive the best possible care. These patients may have difficulty communicating or may find a break in their routine stressful. By understanding ASD-related challenges and devising ways to make patients as well as their parents or caregivers more comfortable, nurses can make a hospital stay, doctor visit or dental checkup less stressful and more effective. Outcomes improve dramatically when health care professionals obtain the education, expertise, and knowledge necessary to provide such care. In this paper we discuss the common challenges that the nursing staff face while dealing with patients with ASD as well as the difficulties families face. Emphasis will be on the role of nursing professionals in making hospital stay less stressful for individuals with ASD.
Bellando, J., Fussell, J. J., & Lopez, M. 2016. Autism speaks toolkits. Clinical Pediatrics, 55(2), 171-175 pp.
Browne, M. E. 2006. Communicating with the child who has autistic spectrum disorder: A practical introduction. (Cover story). Pediatric Nursing, 18(1), 14-17 pp.
Carbone, P., Farley, M., & Davis, T.E. 2010. Primary care for children with autism. American Family Physician, 81(4), 461 pp.
Cheak-Zamora, N. C., & Teti, M. 2015. “You think it’s hard now ... It gets much harder for our children”: Youth with autism and their caregiver’s perspectives of health care transition services. Sage, 19(8), 992-1001 pp.
Chebuhar, A., McCarthy, A.M., Bosch, J., & Baker, S. 2012. Using picture schedules in medical settings for patients with an autism spectrum disorder. Journal of Pediatric Nursing; Apr;28(2):125-34 pp.
Chiri, G., & Warfield, M. E. 2012. Unmet need and problems accessing core health care services for children with autism spectrum disorder. Maternal Child Health Journal, 16(5), 1081-1091 pp.
Cronenwett, L., et al. 2009. Quality and safety education for advanced nursing practice. Nursing Outlook, 57(6): p. 338-348
De, M. 2014. Autism Spectrum Disorder (ASD): the enigmatic disorder that knows no boundaries. The Beats of Natural Sciences. (ISSN-2348-7615) Vol. 1, Issue 3 (September), Article No. 4. pp 1-15.
Debbaudt, D. 2009. Patients with autism and other high risks: A growing challenge for healthcare security. Journal of Healthcare Protection Management, 25(1), 14-26 pp.
Drake, J., Johnson, N., Stoneck, A. V., Martinez, D. M., & Massey, M. 2012. Evaluation of a coping kit for children with challenging behaviors in a pediatric hospital. Pediatric Nursing, 38(4), 215-221 pp.
Dunlap, Jayne Jennings, 2018. Interacting with individuals on the Autism spectrum. American Nurse Today. Vol. 13. No. 4.April issue pp 16- 19.
Galinat, K., Barcalow, K., & Krivda, B. 2005. Caring for children with autism in the school setting. The Journal of School Nursing, 21(4), 208-217 pp.
Golnik, A., & Maccabee-Ryaboy, N. 2010. Autism: Clinical pearls for primary care. Contemporary Pediatrics, November, 42-59 pp.
Gurney, J., McPheeters, M., & Davis, M. 2006. Parental report of health conditions and health care use among children with and without autism. Archives of Pediatric and Adolescent Medicine, 160, 825-830 pp.
Hellings, J., Nickel, E., Weckbaugh, M., McCarter, K., Mosier, M., & Schroeder, S. 2005. The overt aggression scale in outpatient youth with autistic disorder: Preliminary findings. Journal of Neuro - psychiatry Clinical Neuroscience, 17(1), 29-35 pp.
Inglese, M.D. 2009. Caring for children with autism spectrum disorder. Part II: Screening, diagnosis, and management. Journal of Pediatric Nursing, 24(1), 49-59 pp.
Johnson, N. L., & Rodriguez, D. 2013. Children with autism spectrum disorder at a pediatric hospital: A systematic review of the literature. Pediatric Nursing, 39(3), 131-141 pp.
Jolly, A. A. 2015. Handle with care: Top ten tips a nurse should know before caring for a hospitalized child with autism spectrum disorder. Pediatric Nursing, 41(1), 11-22 pp.
Kohane IS, McMurry A, Weber G, et al. 2012. The co-morbidity burden of children and young adults with autism spectrum disorders. PLoS ONE.;7:e33224.
Lindberg, S., I. von Post, and K. Eriksson. 2012. The experiences of parents of children with severe autism in connection with their children’s anaesthetics, in the presence and absence of the perioperative dialogue: a hermeneutic study. Scandinavian Journal of Caring Sciences, 26(4): p. 627-634 pp.
Lokhandwala, T., Khanna, R., & West-Strum, D. 2012. Hospitalization burden among individuals with Autism. Journal of Autism and Developmental Disor - ders, 42(1), 95-104 pp.
Matson, J.L. 2009. Aggression and tantrums in children with autism: A review of behavioral treatments and maintaining variables. Journal of Mental Health Research in Intellectual Disabilities, 2, 169-187 pp.
Marshall, M. 2002. Asperger’s syndrome: Implications for nursing practice. Issues in Mental Health Nursing, 23, 605-615 pp.
Ndubaku, Ugo. 2018. "Barriers to Providing Quality Care for Pediatric Patients with Autism Spectrum Disorder as Identified byBaccalaureate Prepared Registered Nurses: A Basis to Enhance Professional Practice." Doctoral Projects. 74.DOI: https://doi.org/10.31979/etd.9ck7-c9drhttps://scholarworks.sjsu.edu/etd_doctoral/74
Russell, S., & McCloskey, C. R. 2015. Parents perceptions of care received by children with an autism spectrum disorder. Journal of Pediatric Nursing, 31, 21-31.
Saha, Animita C. 2019. Our lives, our healthcare: How autism can affect healthcare. In, Understanding Autism: Through the Lens of parents and Professionals. ISBN 978-93-81574-92-8. Edited by Subir Kumar Dutta and Mitu De published by The Asiatic Society, 1 Park Street, Kolkata. 158–167 pp.
Scarpinato, N., Bradley, J., Kurbjun, K., Bateman, X., Holtzer, B., & Ely, B. 2010. Caring for the child with an autism spectrum disorder in the acute care setting. Journal for Specialists in Pediatric Nursing, 15(3), 244-254 pp.
Searcy, E. 2001. Helping the patient who has pervasive developmental disorder. Journal of the American Academy of Physician Assistants, 14(10), 39 pp.
Simonoff, E., Jones, C. R. G., Baird, G., Pickles, A., Happe, F., & Charman, T. 2013. The persistence and stability of psychiatric problems in adolescents with Autism Spectrum Disorders. Journal of Child Psychology and Psychiatry, 54(2), 186-194 pp.
Souders, M., Freeman, K., DePaul, D., & Levy, S.E. 2002. Caring for children and adolescents with autism who require challenging procedures. Pediatric Nursing, 28(6), 555-562 pp.
Thorne, A. 2007. Are you ready to give care to a child with autism? Nursing, 37, 59- 61 pp.
Tucker, S., Derscheid, D., Odegarden, S., & Olson, M. 2008. Evidence-based training for enhancing psychiatric nurses’ child behavior management skills. Journal for Nurses in Staff Development, 24(2), 75-85 pp.
Vohra, R., Madhavan, S., Sambamoorthi, U., & St Peter, C. 2014. Access to services, quality of care, and family impact for children with autism, other developmental disabilities, and other mental health conditions. Autism, 18(7), 815-826 pp.
Winslow, Paige M., "Preparation of Nursing Students to Address Challenging Behaviors of Patients with Autism Spectrum Disorder in Health Care Settings" 2017. Project for Master of Science at St. Cloud State University as Culminating Projects in Child and Family Studies pp 46.
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